As Bruce Willis‘ dementia battle seemingly continues to be on a downward spiral, his wife, Emma Heming-Willis, has shared a heartbreaking message, RadarOnline.com can reveal.

Emma took to Instagram to share a throwback photo of Bruce with one of their daughters on his shoulders, which she captioned “Dads.”

Emma Heming Willis’ Heartbreaking Post

Source: MEGABruce Willis was diagnosed with frontotemporal dementia in 2023.

In another photo she shared on her Instagram Story, Bruce, 70, was seen giving Emma, 47, a kiss on the cheek while they were at a dinner event.

Her caption was gut-wrenching, as she wrote, “Love is never forgetting how they made you feel.”

The Pulp Fiction actor was diagnosed with frontotemporal dementia in 2023, a brain disorder that causes changes in personality/behavior, difficulty with language, and more. Since his diagnosis, he has mostly remained out of the spotlight, but was recently spotted on an outing with his caretaker.

In photos obtained by The Daily Mail, Willis was seen holding his caretaker’s hand and taking in views of the ocean while he spoke with them.

Bruce Willis’ Daughters ‘Miss Their Dad’

Source: MEGAEmma Heming-Willis said her kids are grieving.

Emma recently opened up about how her daughters are coping with their father’s devastating diagnosis, explaining they’re “doing well all things considered,” even though the situation is understandably “hard.”

“They grieve, they miss their dad so much. He’s missing important milestones, that’s tough for them – but kids are resilient, [although] I used to hate hearing that because people didn’t understand what we were walking through,” she shared.

She also revealed she’s not sure if her kids will ever “bounce back,” but insisted they’re all “learning.”

Emma Heming-Willis Moved Bruce Willis Into His Own Home

Source: MEGAEmma Heming-Willis called moving Bruce Willis into his own home ‘the right move.’

While working through Bruce’s catastrophic health situation, Emma ended up making the tough call to move him into a separate home where he would be supported by caretakers around the clock.

“It was one of the hardest decisions I ever had to make,” she revealed. “But among the sadness and discomfort, it was the right move – for him, for our girls, for me. Ultimately, I could get back to being his wife. And that’s such a gift.”

While it was the right decision for their family, Emma also stressed it was made to help give Bruce more independence and allow him to reconnect with family and friends.

“It’s made such a difference for more friends and family to have their own experience with him without it being my home, without me hovering, or my anxiety of how to manage the guests and their expectations, and then have to see their reactions – their sadness at what is,” she elaborated.

Bruce Willis Is ‘Not Communicating’

Source: MEGAEmma Heming-Willis said Bruce’s health battle has been ‘very painful to watch.’

Emma got candid regarding the status of Bruce’s health battle during a recent appearance on Tamsen Fadal’s The Tamsen Show podcast.

“We’ve been with Bruce every step of the way of his disease and his disease progresses and he declines,” she shared. “So, it’s not like this fast track into like, oh my gosh, he’s not communicating.”

She explained they’re no longer able to have conversations, as it’s been a “slow burn” and “very painful to watch.”

“We communicate with him in our own special way that works for him, that works for us. It looks different from, you know, what the norm would be, but we’re not dealing with anything that is normal,” she added.

Unfortunately, there is no cure for frontotemporal dementia, and the disease typically continues to get worse, with patients typically living eight to ten years after symptoms begin.

Bruce Willis’ wife Emma reveals the surprising reason she went to therapy after his dementia diagnosis

Emma Heming Willis is opening up about one of the toughest calls she’s had to make while caring for husband Bruce Willis — and the therapy she says she needed to prepare for it.

The retired actor, 70, was diagnosed with frontotemporal dementia (FTD) in 2023, a disease that has stripped away much of his language and cognitive abilities.

In August, Emma revealed that the “Die Hard” star had moved into a “second home” nearby, where he receives round-the-clock care in a calmer environment.

“I knew by being honest and open about it that it would be met with a lot of judgment,” Emma, 47, said Thursday during an appearance at Endwell 2025, an annual summit focused on end-of-life care and death.

“I did a lot of therapy around that to kind of, like, get myself ready,” she told co-panelist Yvette Nicole Brown, who shared her own experience caring for her father with dementia.

“The judgment comes from the outside,” the actress, model, entrepreneur and author said.

Some social media users have questioned why the “Pulp Fiction” star isn’t living with his family full-time, while others suggested Emma is neglecting or distancing herself from her husband.

“If you are not on the front lines of this, in that person’s house day in, day out, 365 days a year, you don’t get a say and you don’t get a vote,” she clapped back.

The condition has a relatively early onset, with most diagnoses occurring between ages 45 and 64.

Bruce was 67 when his family announced his FTD diagnosis. His condition had progressed from an earlier diagnosis of aphasia, which was made public in spring 2022.

At first, Emma said, she was navigating the ordeal on her own, afraid the news would leak if she brought in outside support.

“It was Bruce’s neurologist who really woke me up and told me about these statistics of caregivers dying before their loved ones,” she explained. “That was shocking to me.”

Research shows that caregiving can take a serious toll on health. One study found that caregivers’ lifespans can be shortened by up to eight years due to chronic stress and physical strain.

Another found that spousal caregivers face a 63% higher mortality rate compared with non-caregivers of the same age.

“It could be a 10-minute phone call with a friend,” Emma said. “It could be getting out in my garden and killing the plants and then replanting them. I find joy in that,” she continued with a laugh.

“What are the things that are going to feed my soul? That is how I am looking after myself,” she said. “Do I do a great job with it? No, I don’t, but I really try.”

Emma Heming Willis and Demi Moore Step Out for Charity Concert Honoring Bruce Willis: He ‘Would Have Loved This’ (Exclusive)

Keith Richards, Norah Jones and more performed Nov. 5 at the Soho Sessions in N.Y.C. to raise money for the Association for Frontotemporal Degeneration

Emma Heming Willis and Demi Moore with Nicole Rechter and Whoopi Goldberg — Emma Heming Willis, Soho Sessions producer Nicole Rechter, Whoopi Goldberg and Demi Moore at the Nov. 5 Soho Sessions concert in N.Y.C.Credit : courtesy The Soho Sessions

NEED TO KNOW

Emma Heming Willis, Demi Moore and more attended a Nov. 5 Soho Sessions benefit concert honoring Bruce Willis
Willis’ family announced in 2023 that he had been diagnosed with frontotemporal dementia
Keith Richards, Norah Jones and more performed at the show, which raised money for the Association for Frontotemporal Degeneration

Emma Heming Willis and Demi Moore stepped out together for a star-studded benefit concert honoring Bruce Willis.

The pair attended an A-list private show put on by the Soho Sessions on Nov. 5 in New York City, where they helped raise money and awareness for the Association for Frontotemporal Degeneration, a nonprofit that helps people affected by frontotemporal dementia (FTD).

Willis’ family announced in 2023 that the actor, 70, had been diagnosed with FTD, and his wife Heming Willis ex-wife Moore and his five daughters have rallied around him since.

Willis’ former neighbor Keith Richards, Norah Jones, Mavis Staples and Warren Haynes all performed at the intimate event at a loft in New York City’s Soho neighborhood, where guests included Kevin Bacon and Kyra Sedgwick, Michael J. Fox and Tracy Pollan, Whoopi Goldberg, Whoopi Goldberg and more.

“Bruce would have loved this. He always loved live music. [He’d be excited to see] all of them, because all of them are, you know, his friends,” Heming Willis, 47, told PEOPLE ahead of the show. “I think that he would’ve definitely got up there and started playing his harmonica. I’m just grateful that they would show up for this. But they also have their special relationship with Bruce.”

Looking back on when her husband received his diagnosis, Heming Willis wishes she had known “that there was support out there. I know that when we received our diagnosis, we were left with nothing, really; no roadmap, no support, nothing,” she says. And while “caregivers are really unsupported and unseen,” Heming Willis adds, “What I realized is that there actually is support there.”

Norah Jones performing at the Nov. 5 Soho Sessions show raising money for AFTD.courtesy The Soho Sessions

Before the show kicked off, Heming Willis addressed the crowd.

“I just wanna say first thank you all for being here. This is incredible, and I love what you guys are doing here at the Soho [Sessions] to be able to raise awareness for frontotemporal dementia. This is gonna bring all of Bruce’s friends and family together. So thank you for being here. I honestly wish Bruce could be here, but he’s here in spirit,” she said.

Heming Willis added that when the Soho Sessions organizers got in touch with the idea to raise money for AFTD, “I was like, ‘Fuck yeah! Can we please have some fun?’ So, as Bruce would say, live it up. Let’s all continue to live it up and have fun,” she said. “We are here because of the Association for Frontotemporal Degeneration. I wanna give a shout out to … the organization that has been an absolute lifeline for me and our family.”

Jones was onboard to join the A-list lineup as soon as she was asked.

“I got an email just talking about the cause, and it sounded very worthy. I saw Mavis and Keith and it was like, ‘Hey, I’m here.’ I go way back with both of them — I’ve been so lucky to sing with them, hang with them,” she tells PEOPLE.

She first met Willis years ago at an event.

“He was very kind to me one time. He was just really nice to me. He was checking on me all night because I was alone at this weird party,” Jones recalls. “And so I was happy to be here.”

Whoopi Goldberg, Kyra Sedgwick and Kevin Bacon

Andrew McCarthy in the crowd at the Nov. 5 Soho Sessions benefit concert for AFTD.Credit: courtesy The Soho Sessions

Whoopi Goldberg, Kyra Sedgwick & Kevin Bacon at the Nov. 5 Soho Sessions benefit concert for AFTD.Credit: courtesy The Soho Sessions

The Soho Sessions are produced by Greg Williamson and Nicole Rechter and have become an exclusive experience in N.Y.C. nightlife over the past two years, with shows by Paul Simon, Gary Clark Jr., Kate Hudson and others. So far, Williamson and Rechter — who also co-founded the Love Rocks NYC benefit concert — have raised more than $75 million for various charities.

“There was an undeniable energy in the room — that feeling of connection that reminds you why live music matters,” Rechter said of the show for AFTD. “To watch these artists come together for Bruce, to play not just for an intimate audience but for a cause, was powerful and emotional. It’s a night that will stay with all of us.”

Added Williamson: “Some nights have a kind of magic you can’t manufacture, and this was one of them. You could feel the weight of the music, the love in the room and the sense that everyone there knew they were witnessing something they’d never see again.”

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