Bruce Willis, the beloved Die Hard star, was recently seen in Santa Monica, California, during a rare public outing.
The 69-year-old actor, who was diagnosed with frontotemporal dementia (FTD) in early 2023, appeared relaxed as he joined a close friend for a drive and coffee stop.
Dressed casually in a white short-sleeved shirt and a black cap, Willis seemed to enjoy the moment, offering a glimpse into his quieter life away from Hollywood.
This appearance comes as his family continues to provide updates on his health, sharing their journey and efforts to bring awareness to the challenges of dementia.
Willis’s wife, Emma Heming Willis, has been vocal about the family’s approach to dealing with his diagnosis, particularly for their daughters, Mabel (12) and Evelyn (10). In an interview with Town & Country Magazine, Heming shared her philosophy of openness.
“I’ve never tried to sugarcoat anything for them,” she said. “They’ve grown up with Bruce declining over the years. I’m not trying to shield them from it.”
Heming also highlighted the importance of addressing her daughters’ questions about their father’s condition. “If children ask questions, they’re ready to know the answer,” she explained, adding that while they don’t focus on the terminal nature of the disease, her daughters are aware that their father’s health won’t improve.
Determined to preserve the family’s strength, Heming emphasized, “Bruce wouldn’t want FTD to take our whole family down.”
Support from Loved Ones
Demi Moore, Willis’s ex-wife and the mother of his three older daughters-Rumer (36), Scout (33), and Tallulah (30)-has also been candid about the situation.
At the Hamptons International Film Festival, she described Willis’s condition as “stable” and offered insight into her approach.
“When you’re holding on to what was, I think it’s a losing game,” Moore said. “But when you show up to meet them where they are, there is great beauty and sweetness.”
Tallulah echoed this sentiment during an interview with Today, reflecting on her father’s resilience and the love that surrounds him. “There are painful days, but there’s so much love,” she said.
In February, Willis‘s family issued a statement to highlight the realities of FTD, which they described as “the most common form of dementia” yet one that lacks treatments.
They expressed hope that Willis‘s story could shine a light on the disease, inspiring further research and awareness.
“Bruce always believed in using his voice in the world to help others,” the family shared. “If he could today, he would want to respond by bringing global attention to this debilitating disease.”
As Willis navigates this chapter of his life, his family’s advocacy and openness provide a heartfelt example of love and resilience, underscoring the importance of compassion for those affected by similar conditions.
Emma Heming Willis Is Fighting a War on Behalf of Her Husband Bruce
In the spring of 2022, the family of actor Bruce Willis announced that the Die Hard star had been diagnosed with aphasia, a disorder that affects how a person communicates—but that wasn’t the full story. The following year it was revealed that Willis’s specific diagnosis was frontotemporal dementia (FTD), making him one of an estimated 60,000 Americans living with the disease, which can impact language skills, behavior patterns, and movement.
While there are no treatments and no cure for FTD, the diagnosis did inspire Emma Heming Willis, 46, Bruce’s model, writer, and entrepreneur wife, to not only share her family’s story but to take up advocacy to fight the disease. She has been open about the challenges FTD has presented her family and has become active in work to push forward legislation and research regarding the disease; next she’s writing a book about her experience, and in 2025, she will receive the Susan Newhouse & Si Newhouse Award of Hope from The Association for Frontotemporal Degeneration (AFTD) for her contributions to FTD awareness.
Here, Willis speaks candidly about her husband’s diagnosis, its impact on her and their young daughters, and the ways in which speaking out for people living with FTD and those who help care for them has become a driving force in her life.
Katie Couric: When you’re a reporter, you’re told not to ask someone who’s going through something difficult, “How are you doing?” But it’s still an important question. So, how are you and your family doing?
Emma Heming Willis: Today I’m much better than I was when we first received the FTD diagnosis. I’m not saying it’s any easier, but I’ve had to get used to what’s happening so that I can be grounded in what is, so that I can support our children. I’m trying to find that balance between the grief and the sadness that I feel, which can just crack open at any given moment, and finding joy.
KC: I relate to what you’re going through. When my husband was diagnosed with stage four colon cancer, my girls were just five and one. I think about your kids and trying to explain what’s happening to their dad. How have you been able to help them understand the situation?
EHW: This disease is misdiagnosed, it’s missed, it’s misunderstood, so finally getting to a diagnosis was key so that I could learn what frontotemporal dementia is and I could educate our children. I’ve never tried to sugarcoat anything for them. They’ve grown up with Bruce declining over the years. I’m not trying to shield them from it.
KC: How old were they when he first started showing symptoms?
EHW: I say that FTD whispers, it doesn’t shout. It’s hard for me to say, “This is where Bruce ended, and this is where his disease started to take over.” He was diagnosed two years ago, but a year prior we had a loose diagnosis of aphasia, which is a symptom of a disease but is not the disease.
KC: When you finally did get the diagnosis and you had a name to put to what Bruce was experiencing, how did you handle it?
EHW: What I learned from our therapist was that if children ask questions, they’re ready to know the answer. If we could see that Bruce was struggling, I would address it with the kids so they could understand, but this disease is chronic, progressive, and terminal. There is no cure. Obviously, I don’t like to speak about the terminal side of this with them, nor have they asked. They know that Daddy’s not going to get better.
There is no treatment, which is why I’m out there raising awareness, so that they can see that we have some agency in this. I’m not going to allow FTD to take our whole family down. Bruce wouldn’t want that. They’re going to see me fight for our family, have some hope, and help the next family out there.
This is not the opportunity that I would want, but it’s the opportunity that’s been presented. I wanted them to see us come out with our family statement, and I get goosebumps thinking about it how it was received with so much love and compassion. We’ve been able to raise awareness on a global scale, and they could see the reach and impact that their father has. That’s a beautiful thing.
KC: You’re also close to Bruce’s adult children. How have you been able to involve the whole family in his care?
EHW: The family respects the way I’m looking after him; they really support me. If I need to vent, if I need to cry, if I need to rage—because all of that can happen and it’s okay to have those feelings—they are always there to listen. I’m so thankful that we are this blended family. They’re very supportive, very loving, and very helpful, and a lot of people don’t have that.
KC: Can you describe how the disease has manifested itself?
EHW: For Bruce, it started with language. He had a severe stutter as a child. He went to college, and there was a theater teacher who said, “I’ve got something that’s going to help you.” From that class, Bruce realized that he could memorize a script and be able to say it without stuttering. That’s what propelled him into acting. Bruce has always had a stutter, but he has been good at covering it up. As his language started changing, it [seemed like it] was just a part of a stutter, it was just Bruce. Never in a million years would I think it would be a form of dementia for someone so young.
KC: Why do you think there hasn’t been more research into this disease? This must be maddening for you.
EHW: It’s this underdog of a disease, and I don’t know why. Now I am raising my voice and trying to have legislators hear the definition of what FTD is and realize there is so much work to do. I’m going to do the best I can to raise awareness to get to a treatment or a cure. In New York, State Senator Michelle Hinchey, whose father, Maurice Hinchey, had primary progressive aphasia frontotemporal dementia, has become such an incredible advocate. I’ve been following her lead in a lot of things. I was in New York a couple of months ago to support her for this FTD registry, so that when anyone in the state of New York is diagnosed, it gets recorded. What she’s doing in New York I’m copying and pasting here in California. If she can get the FTD registry done in New York, I’m going to try to bring that here. I didn’t know anything about this type of advocacy, so I’m starting at the ground, going to the state capital and raising my voice.
KC: You’re in a position where you can afford care for Bruce, but a lot of families are not able to do that. And I’m sure you think, How in the world are they getting by?
EHW: This disease takes a team, but some people are doing it solo, and I don’t know how. Because I have this support in place, I’m able to be a mother to my children, continue my work, be the best caregiver I can be to my husband. I also have the energy, because of that support, to be able to go out and raise awareness. I also feel guilty about the access that I have that other people do not. So, as much as it’s important to raise awareness for FTD, my hope is that someone in government will understand that caregivers need support. Paid caregiving is very expensive, and rightly so; caregivers deserve absolutely every single cent that they earn, but the average American can’t afford it.
KC: You have formed a meaningful community on social media by sharing your story. Tell me why you wanted to do that.
EHW: It’s a beautiful thing when you can be in a room with other care partners who have been on this journey and understand it. Being able to connect more with social media, I wanted other people to know that they’re not alone.